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The Fault In Our Stars and Ruby Lhianna Smith

John Green’s The Fault In Our Stars deserves every bit of the praise and attention it’s received since its publication. If I’d found this book as a teenager I would have seen myself and hugged it close, even though I’ve never had cancer.

Hazel Grace Lancaster has cancer that has reduced her ability to breathe – she must be on oxygen at all times. Her lungs ‘suck at being lungs’. Her world has been reduced along with her breathing and, concerned about depression, a “side effect of cancer”, her mother makes her attend a weekly  a cancer support group where she meets Augustus Waters, a cancer survivor who has lost part of one leg to his illness. The book tracks their relationship as they share books, play video games, talk about ideas and struggle with how to seize all that life has to offer even as people in the support group die and their own health is compromised. This is a love story but also a story about the power of ideas – and of books – to inform and anchor our lives. A central character is a book, Hazel’s favorite novel that she shares with Augustus and whose ambiguous ending sends them both on a quest for the answers to questions left hanging by the author.

The Fault In Our Stars is funny and sad and beautifully written and you won’t find spoilers here.  I listened to the excellent audio version, narrated by Kate Rudd. In the author interview included at the end, Green talks about his experience working with young cancer patients over a decade ago, and how it informed his writing. This NPR interview addresses his point that young people with cancer want to live while they are alive – all Hazel wants is to be herself, to read, to love and to be loved, to have a creative life.

While I was listening to the book, right about the time that Make-A-Wish came into the story, a request for exhibition venues came into my day job at 4Culture: Ruby Lhianna Smith, a young photographer, wanted to display her work, undertaken with the mentorship of an artist-in-residence at Seattle Children’s Hospital. Working with the family and the hospital, our curator arranged to hang the photographs facing the street as an additional show for the month of June. That work was being installed the day Ruby died. It’s a beautiful group of photos that express her illness and her impulse to life. In the midst of life’s reduction she chose to be an artist, to look outward, to create a legacy. I thought of Hazel and Augustus as the work went up, and the vibrancy of the lives that Green created, with death a side effect of cancer, and life the central point.

 

 

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